The IAF workshops are focussed, interactive sessions, designed to bring together anyone with an interest in the care of people with achondroplasia and related conditions, including clinicians, patient advocacy group representatives, individuals with achondroplasia and their families . Our workshops involve in-depth discussion, consensus gathering, and the development of practical tools and recommendations. By fostering collaboration and shared learning, IAF workshops contribute to ongoing improvements in clinical practice globally.
Achondroplasia Management: Guiding Principles of Care Workshop
10th December 2020
This EAF workshop was carried out to discuss the current management of achondroplasia in Europe, understand the impact of effective recommendations on treatment outcomes, identify principles of achondroplasia care that every patient/family can expect across Europe, and define the role of the EAF in the implementation of recommendations.