About

Welcome to the International Achondroplasia Forum (IAF)!

The IAF is an independent network of specialists managing achondroplasia and related conditions, with a cross-specialty Steering Committee representative of the clinical and patient community.

Our aim is to improve overall care for individuals with achondroplasia and related conditions through establishing and promoting international collaboration between experts, sharing of best practices globally, developing clinical recommendations and supporting educational programmes for the clinical community. We are funded through independent educational grants. All IAF events and resources are free to access.

Register as a member to be kept up to date on all our materials, events and latest news.

Management of sleep-disordered breathing in achondroplasia: guiding principles of the European Achondroplasia Forum

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New EAF Publication!

We are delighted to announce the publication of another manuscript! Fauroux et al. present five guiding principles for the management of sleep-disordered breathing in people with achondroplasia. These guiding principles were developed to address the knowledge gaps in this area and focus on lifelong assessment and proactive management to support optimal screening and care. The EAF has now expanded to the IAF! Register to stay informed of our upcoming workshops in achondroplasia and related conditions.

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Publication thumbnail: Management of sleep-disordered breathing in achondroplasia: guiding principles of the European Achondroplasia Forum

Management of sleep-disordered breathing in achondroplasia: guiding principles of the European Achondroplasia Forum

Publication thumbnail: Recommendations for management of infants and young children with achondroplasia: Does clinical practice align?

Recommendations for management of infants and young children with achondroplasia: Does clinical practice align?

Publication thumbnail: European Achondroplasia Forum Practical Considerations for Following Adults with Achondroplasia

European Achondroplasia Forum Practical Considerations for Following Adults with Achondroplasia

Publication thumbnail: European Achondroplasia Forum guiding principles for the detection and management of foramen magnum stenosis

European Achondroplasia Forum guiding principles for the detection and management of foramen magnum stenosis

Steering Committee